Motor Neurone Disease​
Disability Support & Care Services
Motor Neurone Disease Information
MND most often begins with muscle weakness in the hands, feet, or voice, although it can present in different parts of the body with varying patterns, symptoms, and rates of progression. People with MND become increasingly disabled as the disease progresses with a life expectancy of one to five years after diagnosis. Only 10 percent of people with MND live 10 years or more after diagnosis.
People living with MND have complex and varying needs. The physical effects of MND frequently include weakness or fatigue; muscle aches and cramps; clumsiness and stumbling; slurred speech or difficulty swallowing and chewing; muscle wasting and weight loss; emotional instability and cognitive changes; and difficulty breathing. As the disease progresses, patients will develop generalised paralysis, inability to speak or eat normally, weakness of their respiratory muscles, and mild behavioural and cognitive changes.
The cause of MND is unknown, but there are many theories and extensive research into possible inciting mechanisms. Nonetheless, five to ten percent of cases are known to be genetically linked. As patients' functional status declines, they will require increasing levels of care and support.
Why Choose Maple For Motor Neurone Disease Support?
Maple has everything you or your loved one needs in Motor Neurone Disease Support! What makes us different? Perhaps the most important thing is our vast experience helping people with MND. Though for you or your loved one, maybe the most critical element is our training and expertise in MND support.
Our priority is matching you with a like-minded Support Worker, someone who speaks your language, understands your goals, and is committed to ensuring you have all the necessary support you need to live your life to the fullest.
People choose Maple because we care. We are a group of professionals from all walks of life who want to make a difference in yours. You can see testimonials from other participants on our community page.
The Maple Family will work with you to create a personalised approach to your support schedule and roll out. We will continually review and recommend support updates, playing a pivotal role in ensuring the support you receive are optimal for you to achieve your personal, social, and emotional wellbeing goals.
We are renowned for our extremely fast turnaround and approval times for Referrals. Please reach out to us for help with your SIL, Core Support, Plan Management, and Support Coordination Referral.
What Does Our Motor Neurone Disease Support Involve?
We have four major categories of MND support services. Each type of MND care contributes to your overall well-being and expands personal options to live a life that is most fulfilling.
By providing each of these elements, we help you set a course for greater independence with reliable support.
Types of Motor Neurone Disease Support Services
Motor Neurone Disease Support Services can begin early and continue through your or your loved one’s life, meeting needs in a variety of ways. At Maple, our MND specialist can help you arrange services to help you every step of the way.
Yes! If you or your loved one suffers from MND, it is covered under the National Disability Insurance Scheme (NDIS), and you may be eligible for funding to avail of our support services.
Motor Neurone Disease is in the List A category of NDIS eligibility. However, your loved one’s diagnosis must have been classed as severe to meet the requirements for List A (for example: assessed as Level 3, 4, or 5 on the Gross Motor Function Classification System – GMFCS). If this is the case, then you’re very likely to be approved for funding. If you don’t have a diagnosis of severe MND, you may fall under List B which means further functional assessment may be necessary prior to being approved for NDIS funding.
At Maple, we can assist you in the assessment process to see if you or your loved one qualifies for NDIS MND benefits. If you or your loved one meets the criteria, we have the capacity to provide comprehensive services to enhance your quality of life.
The NDIS funds several critical services for people with Motor Neurone Disease. These include speech and occupational therapy, consumable and assistive technologies, physiotherapy, personal care support, nutritional support, and behavioural support. NDIS funding can even pay for a Support Worker to assist you or your loved one at home. Plan Management and Support Coordination Funding are almost always offered to NDIS Participants when they receive their plan. The types and amounts of funding available are determined in part by the severity of functional loss.
For children younger than seven years of age, NDIS funding provides early interventions, takes a family-centred approach, and helps families connect with MND service providers. At Maple, we can assist you or your loved one with the NDIS application to receive your or your loved one’s needed funding.
Skills & Qualifications of our Motor Neurone Disease​ Support Workers
Our Support Workers for Motor Neurone Disease​ have studied and trained diligently to understand and respond to the needs of people with MND. You can feel confident and at ease with our Motor Neurone Disease​ Support Workers’ exceptional skills and qualifications. We pride ourselves on our years of experience providing MND support.
You’ll partner with a highly qualified MND specialist in Sydney or wherever you are in Australia to improve your or your loved one’s life and enhance your overall well being.
Will NDIS pay for Motor Neurone Disease assessment?
NDIS provides access to independent assessments for children and adults to determine their level of functioning. Rather than focusing on the specific diagnosis, these MND assessments are designed to determine the functional deficits of your or your loved one’s disability and level of impairment requiring support in everyday life. Talk to one of our Motor Neurone Disease​ Support Workers for more details.
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