Muscular Dystrophy NDIS
Disability Support & Care Services
Muscular Dystrophy Information
Muscular Dystrophy can present at any age, but most cases are identified in childhood and young boys are more prone to the disease than girls. Symptoms may include issues with standing up or walking, difficulty swallowing or breathing, or muscle weakness and incoordination. These symptoms can affect the ability to perform many normal activities depending on the severity of the illness.
The specific type of Muscular Dystrophy affects the patient’s prognosis. Many people with the disease can lose the ability to walk, talk, eat, or look after themselves and will eventually require assistive devices and other supportive measures. There is currently no cure for Muscular Dystrophy, but certain treatments and supports can help someone with the disease to live a more comfortable, fulfilling, and independent life.
There are several different categories of Muscular Dystrophy, with more than 30 sub-types with varying severity and symptoms:
Duchenne Muscular Dystrophy is the most common type among children, almost exclusively affecting boys. Children with Duchenne Muscular Dystrophy develop symptoms at a young age, initially having difficulty standing up and walking. As it progresses, they will continue to have issues with movement, posture, and reflexes, often with mild intellectual impairment.
Becker Muscular Dystrophy is similar to Duchenne, though less severe. It also affects boys and usually presents as muscle weakness in the arms and legs, developing between the ages of 11 and 25. Patients with Becker are unlikely to digress as quickly as Duchenne, or they may never reach the same levels of disability, but daily living activities can still be significantly affected.
Congenital Muscular Dystrophy is often apparent before the age of 2 when parents notice their child’s motor functions and muscle control aren’t developing as they should. Symptoms of Congenital Muscular Dystrophy can vary drastically, where some patients succumb in infancy, while others live into adulthood.
Myotonic Dystrophy is also known as Steinert’s Disease. It causes myotonia, exclusive to this type of Muscular Dystrophy, which is an inability to relax muscles after they contract. It is most common in young adults and symptoms can vary greatly from mild to life threatening.
Facioscapulohumeral Muscular Dystrophy (FSHD), also called Landouzy-Dejerine Disease, affects the upper body and face and can cause hearing and respiratory dysfunction. Appearing in young adults, It progresses slowly and patients can live a long life, though support can improve a patient’s daily living.
Limb-Girdle Muscular Dystrophy causes loss of muscle bulk and strength. It causes symptoms primarily in the shoulders and hips, but people with this condition have a normal life expectancy. Patients develop symptoms in their 20s, after which they may require support for optimal functioning.
Oculopharyngeal Muscular Dystrophy (OPMD) can cause weakness in the face, neck, and shoulder muscles later in life in men and women, causing difficulty in daily activities.
Distal Muscular Dystrophy, also known as Distal Myopathy, affects muscles in your extremities including the hands and forearms; and feet and calves. It can also cause respiratory or heart symptoms. It presents in middle-aged adults and patients may require assistance or support.
Why Choose Maple For Muscular Dystrophy Support?
When it comes to Muscular Dystrophy Support, Maple has everything you or your loved one needs! What makes us different? Maple Community Services is a family owned and operated business that has rapidly grown from our origins in Western Sydney, to delivering supports nationwide. Our point of difference – for us it is all about real life connections. We are committed to serving our community the way we know they like; and our Customer Service model reflects this to a tee. Talk to a real person in real time; get real life support, in the moment solutions, and 24/7 responses.
People choose Maple because we care. We are a group of professionals from all walks of life who want to make a difference in yours. You can see testimonials from other participants on our community page.
The Maple Family will work with you to create a personalised approach to your support schedule and roll out. We will continually review and recommend support updates, playing a pivotal role in ensuring the support you receive are optimal for you to achieve your personal, social, and emotional wellbeing goals.
We are renowned for our extremely fast turnaround and approval times for Referrals. Please reach out to us for help with your SIL, Core Support, Plan Management, and Support Coordination Referral
What Does Our Muscular Dystrophy Support Involve?
We have four major categories of Muscular Dystrophy Support Services. Each type of Muscular Dystrophy Care contributes to your overall well-being and expands personal options to live a life that is most fulfilling.
By providing each of these elements, we help you set a course for greater independence with reliable support.
Types of Muscular Dystrophy Support Services
People living with Muscular Dystrophy face the known physical challenges but apart from this there are social, family, career and emotional challenges involved. It is crucial that they receive the support they need to remain as independent as possible and fulfill their desires to continue working, studying and travelling for as long as possible.
Muscular Dystrophy support services can begin early and continue through your or your loved one’s life, while assessing and adjusting the supports required to your needs. At Maple, our Muscular Dystrophy Specialists can help you arrange services to assist you every step of the way.
Yes! If you or your loved one suffers from a type of Muscular Dystrophy, it is covered under the National Disability Insurance Scheme (NDIS), and you may be eligible for funding to avail of our support services.
The type of Muscular Dystrophy and the severity of your symptoms determines your eligibility. For the NDIS, different forms of Muscular Dystrophy and severity are listed under categories B, C and D. At Maple, we can assist you in the assessment process to see if you or your loved one qualifies for NDIS Muscular Dystrophy benefits. If you or your loved one meets the criteria, we have the capacity to provide comprehensive services to enhance your quality of life.
The NDIS funds several critical services for people with Muscular Dystrophy. These include occupational therapy, physiotherapy, personal care support, community participation, nutritional support and customized home services. NDIS funding can even pay for a Support Worker to assist you or your loved one at home. Plan Management and Support Coordination Funding are almost always offered to NDIS Participants when they receive their plan. The types and amounts of funding available are determined primarily by the level of disability.
For children younger than seven years of age, NDIS funding provides early interventions, takes a family-centred approach, and helps families connect with Muscular Dystrophy service providers. At Maple, we can assist you or your loved one with the NDIS application to receive your or your loved one’s needed funding.
Skills & Qualifications of our Muscular Dystrophy Support Workers
Our Support Workers for Muscular Dystrophy have studied and trained diligently to understand and respond to the needs of people with Muscular Dystrophy. You can feel confident and at ease with our Muscular Dystrophy Support Workers’ exceptional skills and qualifications. We pride ourselves on our years of experience providing Muscular Dystrophy Support. You’ll partner with a highly qualified Muscular Dystrophy Specialist in Sydney or wherever you are in Australia to provide the support you need to enhance you or your loved ones life.
Our Muscular Dystrophy specialists have targeted expertise to provide assessments and treatment for people with disabilities. Our Support Workers have training and experience in all aspects of Muscular Dystrophy support, from special programmes for young children to occupational supports for adults with Muscular Dystrophy. We have specialised techniques and methodologies to specifically work with children and improve their functioning.
Will NDIS Pay for Muscular Dystrophy Assessment?
NDIS provides access to independent assessments for children and adults to determine their level of functioning. Rather than focusing on the specific diagnosis, these Muscular Dystrophy assessments are designed to determine the functional deficits of your or your loved one’s disability and level of impairment requiring support in everyday life. Find out more by connecting with our Muscular Dystrophy Support Workers.
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